Your Data Matters to the NHS
Information about your health and care helps us to improve your individual care, speed up diagnosis, plan your local services and research new treatments. The NHS is committed to keeping patient information safe and always being clear about how it is used.
How your data is used
Information about your individual care such as treatment and diagnoses is collected about you whenever you use health and care services. It is also used to help us and other organisations for research and planning such as research into new treatments, deciding where to put GP clinics and planning for the number of doctors and nurses in your local hospital. It is only used in this way when there is a clear legal basis to use the information to help improve health and care for you, your family and future generations.
Wherever possible we try to use data that does not identify you, but sometimes it is necessary to use your confidential patient information.
You have a choice
You do not need to do anything if you are happy about how your information is used. If you do not want your confidential patient information to be used for research and planning, you can choose to opt out securely online or through a telephone service. You can change your mind about your choice at any time.
Will choosing this opt-out affect your care and treatment?
No, choosing to opt out will not affect how information is used to support your care and treatment. You will still be invited for screening services, such as screenings for bowel cancer.
What do you need to do?
If you are happy for your confidential patient information to be used for research and planning, you do not need to do anything.
To find out more about the benefits of data sharing, how data is protected, or to make/change your opt-out choice visit www.nhs.uk/your-nhs-data-matters
Download a copy of the patient leaflet
NHS Digital has been directed to collect, process, analyse and disseminate general practice data to support the purposes set out in the GP Data for Planning and Research Direction 2021. This is a national initiative and from July 1st, 2021, patient data will be extracted from GP systems on a daily basis; data will be encrypted in transit and pseudonymised.
As this is a statutory obligation, practices are legally obliged to share this data, unless patients have opted out of having their data shared. If you as patient want to opt out of your data being shared, apart from information used for your direct care, you have the option of registering a Type 1 Opt-out or a National Data Opt-out, or both.